As intense debate continues in Washington, DC over the future of your healthcare, it is more important than ever to take an active role in your own health and the choices that are available to you and your family. Not everyone has a choice in which hospital they use - especially in an emergency. But there are ways to compare hospitals and doctors in your area so that you can make an informed decision when the need arises. If you are planning an elective surgery, or if you have a chronic medical condition that may require frequent hospitalizations, obtaining some information about your choices may give you a more positive experience.
To obtain detailed information on specific hospitals, including outcomes for certain procedures, patient safety information, and cost of care, check out www.healthgrades.com. Health Grades is a national corporation that collects, interprets, and provides information on hospitals and physicians to consumers, insurers, and employers. While the information can be very helpful, it must be used only as a guide, since it does not take into account all of the factors involved in successful patient outcomes.
Another useful website is www.hospitalcompare.hhs.gov. This site provides information on how well hospitals care for patients with certain medical conditions or those having certain procedures. It also includes results of a survey of patients about the qality of care they received during a recent hospital stay. This site also provides the rate of readmission - how often patients treated at your hospital end up returning within 30 days of going home.
These "readmission rates" can be a clue to how well your hospital cares for its patients. Those hospitals with low readmission rates have generally provided good quality care and effective discharge planning. They have communicated the important information that patients and families need to know to be compliant with the plan and get follow-up care in a timely manner.
Choosing a hospital is a decision that should not be taken lightly. Do your homework and ask questions. Knowing how your hospital performs can help you to make good decisions about your own care.
The day of discharge from the hospital should never come as a surprise. At the time of admission to the hospital a discussion should take place about the anticipated length of stay and planning for discharge should ensue. In most instances a Discharge Planner is assigned to each patient and will meet with patients and families before going home. Some patients may need visits by Home Health nurses or Physical Therapy. Others may need to go to a rehabilitation or nursing facility. There are many options depending on your location. It is important to be prepared before the decision has to be made.
Discharge from the hospital does not mean that the patient is fully recovered. Patients are discharged when there is no longer any need for acute care hospital services. While this may seem to be financially motivated, there are many other reasons that short hospital stays are best for everyone. As discussed in Chapter 6, prolonged hospital stays increase the risk for hospital-acquired infections and other hazards including medication errors, blood clots, falls, and other injuries.
Delayed discharges also create risks for other patients. Hospitals are usually short of beds these days and when discharges are postponed, more patients are forced to wait in the Emergency Department or transfer to another hospital. Some hospitals have “discharge times” that require patients to leave by a certain time. Although this is certainly a cost saving measure, it also allows for time to pick up prescriptions, equipment, and any other unforeseen needs once a patient returns home.
The discharge planner is usually an experienced nurse or social worker. It is important to maintain contact with this person throughout the hospital stay, especially if the patient is elderly or if there will be special needs after discharge. As the hospital stay progresses, the discharge needs will likely change. With a planned surgery such as a joint replacement, your doctor will tell you the expected date of discharge and can help you to determine whether you can go directly home or if you will need to go to a rehabilitation facility.
With an unplanned and unexpected illness, outcome may be uncertain at first but will become clearer as the days go on. There are many people and services available for help with discharge planning but the ultimate responsibility lies with the patient and their family. Some of these services are covered by insurance and some are not. Find out what your policy will cover and anticipate any costs you might have to incur.
The decision to provide nutrition and hydration at the end of life is probably the most controversial, and least understood issue in the care of the dying patient. In our society we think of food and water as the most basic needs of a human being. But in the dying patient the physiology changes and the body may not be able to handle the excess fluids and nutrients. In fact - providing these fluids, nutrients, and medications may lead to harm and increased suffering.
At the start of this new year, the nation's Catholic hospitals face a new mandate by the US Conference of Catholic Bishops (http://www.sfgate.com/cgi-bin/article.cgi?f=/c/a/2010/01/03/BA321BC2R1.DTL) requiring their hospitals and doctors to "provide life-sustaining food, water, and medicine to comatose patients who have no hope of recovery."
Using artificial means of hydration by administering intravenous fluids to dying patients has been proven to be of limited benefit and may even be harmful. Evidence from medical research and experience suggests that it is more comfortable to die without the use of artificial hydration. In previous generations, death was allowed to happen naturally, without intervention. Only recently have we adopted the false concept that dying patients may be starving or thirsty as they near the end of life.
Artificial hydration may cause discomfort by increasing respiratory secretions, leading to difficulty breathing and a choking sensation. This often increases anxiety as well. Because the body can no longer handle the excess fluid, there may be accumulation of fluid in the tissues causing swelling of the arms and legs and sometimes the face. Swelling may also occur in the abdomen, called ascites, which makes breathing more uncomfortable. In some circumstances hydration can alleviate symptoms of delirium in dying patients. This benefit may be outweighed by the difficulties associated with maintaining IV access in those who are already agitated or confused.
In certain circumstances, such as a temporary and reversible illness, artificial nutrition and hydration can be beneficial and help in recovery. When they are used at the end of life they are of little benefit. If the body is unable to absorb and process the food because of illness, forcing nutrition will not prolong life and may, in fact, cause additional discomfort and prolong the dying process.
Although the article states that "the November decree isn't rigid and leaves room for accommodating patients' wishes," this may make the difficult end-of-life decisions even more complicated for families and loved ones of the dying patient.